Rockland County, NY
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My son, Anthony, was born with Tuberous Sclerosis Complex (TSC). Anthony was born with tumors in his heart, brain and eyes. At five months old, the tumors in his brain caused Anthony to begin having seizures. To this day, we continually work to keep his seizures to a minimum although he has rarely had a period where he has been seizure-free. Struggling with this condition, Anthony’s development is delayed and he receives daily therapy sessions, including physical therapy, occupational therapy, speech therapy and special education, which help keep him moving forward.
The Tuberous Sclerosis Alliance not only provides us with the information we need to make the best decisions for Anthony, but also gives us hope that one day a cure might be found for this devastating condition.
Not only do I plan to continue to be an individual supporter, but I plan to host kettlebell lifting workshops throughout the year with the proceeds to be donated to the Tuberous Sclerosis Alliance in Anthony’s name.
What is TSC?
Tuberous sclerosis complex (TSC) is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. You will see it referred to both as tuberous sclerosis (TS) and tuberous sclerosis complex (TSC).
The disease affects some people severely, while others are so mildly affected that it often goes undiagnosed. Some people with TSC experience developmental delay, mental retardation and autism. However, there are also many people with TSC living independent, healthy lives who enjoy challenging professions such as doctors, lawyers, educators and researchers.
Donations
A donation to the Tuberous Sclerosis Alliance can make a difference in the lives of those affected by tuberous sclerosis complex in a variety of ways. There are several options available for making a gift to the TS Alliance. Follow this link to choose the one most convenient for you.
If you would like to make an online donation, you can use the link below.
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Rockland County, NY
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